PKU
My youngest son Gage has PKU (read about it here and here). Sixteen months ago when he was born and we learned of his metobolic disorder it was a difficult thing to come to terms with. An individual with PKU cannot eat the things that you or I can. It requires a very limited diet for life. He will never eat anything with any trace of protein in it and will only be able to eat a measured amount of some fruits and vegetables. It will be something he’ll need to think about every day of his life.
My biggest concern about this hasn’t been the work or the change of patterns for us, but making sure he doesn’t feel isolated and alone. So much of our society is based around food. Family reunions, celebrations, parties, holidays, etc. They all typically have big meals as their center.
To my other two kids, Gage isn’t any different, he just requires special food. Last night we made PKU friendly tortillas for him to eat as we ate ours. It was an event the whole family enjoyed. Gage isn’t alone.
